Its been busy again both work wise and social wise. Last Sunday we had our 2nd CI South West social gathering. We used the same pub in Bristol as last time. there was 10 of us at one point and was a very good day. There were 4 AB users, 1 Cochlear and 1 Med El user. As usual it was good to see everybody.
The picture above is of us around a Gromit Statue in Bristol. They are scattered around the area in all different colours. This picture appeared on the Gromit Website photo album. But ours is special this Gromit is a CIborg Gromit, I stuck my Neptune on its ear…….
If you go to the page of Aug. 12-13 we are there somewhere. We finished the evening off at one of my frequented pubs in Bristol, a small bar, good ales and very entertaining. Its a bit like a public bar when pubs were once 2 bars. I’ll leave the rest to your imagination.
Yesterday I had 2 hospital appointments, one with the consultant, the other for a re map.
The one with the consultant was interesting. It was with the one who operated on me in Jan 2010 to remove more of the dreaded disease in my ear. She said back then, at some point in my life I will need a CI, and she was right. My ear was cleaned out, and boy did I go dizzy after that, I don’t normally get that, but yesterday I did. I had to stop everything for a few minutes. After that we carried on. We talked about 2nd Implants, like one in my right ear. Hmm, as we know adults only get the one CI unless you have special circumstances like deaf/blind. Or you fight for a 2nd one and win.It was mentioned interestingly that people with a Mastoid Bowl (That’s where the Mastoid bone behind the ear is removed through disease, the Mastoid bone is the aero bar type bone) cannot have a CI unless the ear canal is closed off and filled with belly fat as the Implant itself would be left exposed to infection etc. So its ear drops again for 2 weeks, a follow up in 4 weeks, and off to see the main consultant in October, that seems along way off……….
Above shows the disease I have been suffering from over the years, it’s a basic picture, the disease is the thing above the ear canal/ear drum. The yellow/orange bone towards top of picture is the mastoid bone.
After the consultant a Hearing test was carried out on my right ear, it went up to 110dbs and I still couldn’t hear a thing, so that’s the end of all my natural hearing.
After that appointment I went off to the CI clinic for a Map session. This was an extra one as I was struggling with volume. My volume dial was on full blast. We added volume to both my Harmony and Neptune, plus moved the settings about. Its wonderful now, back to what I was 2 months ago. I am currently sat with the tv on and NO subtitles, I must concentrate and if I do, bingo I can follow. So my next challenge is to learn to watch TV all the time with no subtitles. Whilst at the CI centre is had a look at the new Med El Rondo processor, the all in one thingy. It’s rather odd, and looks like an Angry Bird. The big one that drops the bombs to those who play it………….In the pictures i have seen of the Rondo it looked massive, but to see it in real life, its smaller. Using the telephone with it would be a challenge.
But after yesterdays mapping i can hear so much better. give it a few days and i will settle into the new maps. Must be the other months ‘suspected meningitis’ and all the other worries that caused the change. It changed my weight too. I was nearly 14 stone (13st13lbs) when admitted, now 2 months later, 12st 12lbs. Niicceeeeee.